Showing posts with label dyscalculia. Show all posts
Showing posts with label dyscalculia. Show all posts

Sunday, 3 March 2024

Dyscalculia Awareness Day - Daily life with Dyscalculia




Today March the 3rs is Dyscalculia Awareness Day. What (You may ask) is Dyscalculia? As most people indeed need to ask, and therefore this day is much needed. Dyscalculia is one of the neurodiverse diagnoses which is specific to people who have difficulty identifying, reading, sequencing, and understanding numbers, values, and mathematical processes. It is akin to dyslexia but with numbers. However, unlike dyslexia, which many people at least have heard of, but may not actually fully comprehend, dyscalculia is less well known. I have even spoke to teachers who don’t understand what it is and aren’t even aware of its existence. It is a bit rarer than dyslexia, which affects 9-12% of the global population, Dyspraxia is up to 6%. However up to 40% of people with dyslexia also have dyscalculia. I am one of the 40%.

I wasn’t diagnosed with dyscalculia until aged 19, the same time I officially got diagnosed with dyslexia, however every teacher knew I had dyslexia as it was better known and understood, so individual teachers gave me extra support, and because I wasn’t officially diagnosed many of them wrote to the exam boards asking for me to get extra time, which I indeed received due to barrage of letters and evidence that each teacher individually sent them – for which I will forever be grateful. Despite this is still struggled a I was still on first readers ‘Billy Red Hat’ type book when I went up to secondary school, but at least it got recognised and I received helped.

Math on the other hand was a different matter. I couldn’t learn my times table and frustration as to why, came out in discipline from my parents and epic temper tantrums and fits of violent outbursts from me, coining me the title problem child’. Learning math was incredibly difficult as numbers didn’t move on the page (as poetic descriptions) but every time I looked down from textbook to exercise book or board to paper, the numbers were in a different order. I can tell you getting the correct answer for a sum, when the number keep changing if very difficult and frustrating. Plus, I never got any help. No one in school had any idea about dyscalculia, not the math teachers, not Learning Support, not even the educational psychologist. I just got labelled lazy which added to the frustration as I was working so hard to try and master it.



But challenges were not excusive to math, one of the biggest and still most difficult tasks is reading clocks analogue or a digital. Trying to work out the time when numbers are creating havoc is impossible. And a 24-hour digital is no better, you can’t image how many times I have turned up to an appointment at the wrong time as I have misunderstood the time. either too early or too late. This also extends to dates. In my early twenties I turned up to a job interview on the wrong day as I miss read the date. They were surprised when I arrived and quipped I was early, explained how much early and proceeded to interview me. The first question; ‘what is you attention to detail like’. I didn’t get the job.

Then there are phones, do you remember back in the 80s and 90s, when phones were attached to a wall, and you had to dial the number? Well, I do, and it is a horrific memory. I could dial the same number incorrectly serval times, resulting in an embarrassing exchange with the person I had disturbed on the other side. Resulting in epic meltdowns. As an adult the phone issue persists but know there is the technology to have all your number stored on your phone, and most numbers you can dial straight from the web on your mobile, which is much easier. But I still hate phoning people due to all the childhood trauma and avoid it where possible.





Technology may help on some ways, like the phone, but with others it is getting increasingly difficult to navigate. This is because of digitalisation and the ever-growing reliance on pin codes both pure numerical and also letter and numbers (remember dyslexic too). I often can’t use my debit cards as I can’t get the four number correct. I once had a house with a pin-lock rather than a key, I spent hours locked out waiting for my husband to come home. So I come back to the tool that helps, by phone, as I note my pin code on there.

Then there was France. A holiday with a friend and her son and mine. Which was lovely until, I had my phone stolen. Before you ask, no I don’t speak French. It was tricky enough mastering English (dyslexia). So I am stuck in a foreign country where I don’t speak the language and I can’t use my debit cards because I can’t get the number right. It was isolating, embarrassing and far from relaxing.

But by far the biggest obstacle is that people are not aware of it, or its impact, and treat you as if you are deficient on the intelligence front. This is why the protagonist in my latest novel ‘Ashley Grimes Mammoth Whisperer’ has both dyslexia and dyscalculia.

A few years ago, the BBC news ran an article about a professional dancer who has severe dyscalculia, I posted it everywhere, and many adults replied who also have it. They were all very interested to hear that I was writing a children’s book with the main protagonist that has dyscalculia. All of them wishing they could have a read a book as a child with someone like them reflected, so they knew they would have known they weren’t alone. So, I have worked really hard o make my own voice depiction as accurate authentic and positive as possible and am now embarking on submitting hoping it will find a home and maybe provide the sort of reading experience for children with dyscalculia that me and other people would have loved to have had as children. An acknowledgement and knowing they are not the only ones.

Wednesday, 24 August 2022

Neuro Diversity, The Preverbal Swan, and the Humble Mobile Phone

A few years ago, when I was working front of house at a museum, I attended a course on Deaf Awareness. The course was run a lovely man who was profoundly deaf. It was very illuminating, as there were so many things that caused deaf people issues that seemed so obviously but that we’d hearing people had never thought of. At one point he explained how mobile phones had revolutionised communication of the deaf community. This caused some stifled giggles from some of the older attendees, largely those that can recall the ‘Not the Nine O’Clock News’, Rowan Atkinson, Deaf Telephone News Skit – (it you know you know – and like me you’re old!) Thankfully the course leader laughed too, and said he’d had the exact same response when a deaf friend advised him to get mobile phone. However, it was not the ability to make calls on the go – but the innovation of text messages that had the positive impact. And of course this was greatly improved with the advent of smart phones and video calling meaning it’s possible to have conversations in sign language that has had the positive impact.






Now I am not profoundly deaf (I am a little bit deaf) but I’d never compare myself to that or my Neuro Diverse issues with what the deaf community faces, but there are some similarities. For example how the mobile phone can help neuro diverse people navigate the modern world, and how many neuro-typical people are largely oblivious to their difficulties.

I have dyslexia and dyscalculia. Most people have some idea of what dyslexia is, but few people have heard about dyscalculia or know that it affects your ability to process and understand numbers. Living with dyslexia and dyscalculia is a challenge in a world that is increasingly reliant on password, passcodes and pins numbers. Many of which are a sequence of letters, or letters and numbers.


 

Having Dyslexia I have a dreadful short term memory. I can remember exactly three telephone numbers

  • My mobile phone number – but only if I recite in a particular rhyme.
  • My childhood telephone number - as it was the same for twenty years, but due to relocation is no longer belonging to anyone I know.
  • My parent’s landline, which they had for over nineteen years. However they disconnected it a few weeks ago.


*I also do not know any pin number/passcodes. And if I do I can’t input them correctly.





So I rely on my digital Swiss Army Knife (to quote someone much cleverer than me), and use my mobile as a database. I save my codes and passwords on it, so I can easily find them or even copy and paste them. This is fine until something happens to your phone.

Recently I was on holiday in France, with my son, and my friend and her son – and I lost my phone. I was stuck in foreign country where I didn’t speak the language, I couldn’t contact anyone as I don’t know any telephone numbers, and I can’t get any money out or pay for anything by card if a pin is required. Essentially I couldn’t function. This didn’t make for a relaxing holiday at all.

The reason I’m writing this post is that many people didn’t grasp the impact of not having a phone had on me, and seemed to think I was overreacting. I had a lot of well-meaning comments like…

“it’s annoying but… it’s only stuff, it can be replaced.”


People don’t see. It’s not a mere inconvenience, it takes away my ability to be independent and participate in modern life. It’s like taking away someone’s glasses.

Having penned this blog on holiday. I was umming and erring about posting this blog. However earlier today another ND friend broke her phone and going through a similar ordeal. So I decided to be brave and put this post up. To highlight, that although neuro diverse people are articulate, intelligent and together people many of our struggles go unnoticed, like the preverbal swan, its invisible – nothing to see on the surface, and yet we have many many coping mechanisms set up so we can function. And so a broken or lost mobile phone may indeed be a whole lot more than an inconvenience.